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Personal health records, global policy and regulation review

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  • Flaumenhaft, Yakov
  • Ben-Assuli, Ofir

Abstract

Personal health records (PHR) have been endorsed as a promising tool for the self-management of an individual's medical information, affording benefits to both the individual patient and the healthcare system as a whole. Nevertheless, adoption rates have been relatively slow and widespread acceptance has yet to be achieved. A significant obstacle often cited as delaying the implementation of these systems has been concern regarding the ability to properly ensure the security and privacy of this sensitive information. This article reviews the current legislative landscape in various countries, examining the degree to which they address these issues and support the implementation of PHR's. This review compares in particular a number of prominent components of health data security and privacy across five different legislative jurisdictions in order to allow for a closer examination of regulatory approaches and measures. Of the legislation reviewed the EU's GDPR stands out as seemingly providing the most comprehensive and stringent protection measures, yet nonetheless appears to leave significant room for interpretation and a degree of ambiguity in key areas. The results of this comparison, demonstrate considerable variances with regards to legal terminology and the degree of compliance required from entities offering PHR services across various jurisdictions. The paper ends with a discussion of specific policy implications and recommendations stemming from the current legislative state of affairs.

Suggested Citation

  • Flaumenhaft, Yakov & Ben-Assuli, Ofir, 2018. "Personal health records, global policy and regulation review," Health Policy, Elsevier, vol. 122(8), pages 815-826.
    • Handle: RePEc:eee:hepoli:v:122:y:2018:i:8:p:815-826
    DOI: 10.1016/j.healthpol.2018.05.002
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    References listed on IDEAS

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    1. Ben-Assuli, Ofir, 2015. "Electronic health records, adoption, quality of care, legal and privacy issues and their implementation in emergency departments," Health Policy, Elsevier, vol. 119(3), pages 287-297.
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    Cited by:

    1. Şık, Ayhan Serkan & Aydınoğlu, Arsev Umur & Aydın Son, Yeşim, 2021. "Assessing the readiness of Turkish health information systems for integrating genetic/genomic patient data: System architecture and available terminologies, legislative, and protection of personal dat," Health Policy, Elsevier, vol. 125(2), pages 203-212.
    2. Tsai, Pei-Hsuan & Wang, Ying-Wei & Yeh, Hsin-Jang, 2021. "An evaluation model for the development of more humane correctional institutions: Evidence from Penghu Prison," Evaluation and Program Planning, Elsevier, vol. 89(C).

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