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Expenditures in caring for patients with dementia who live at home

Author

Listed:
  • Weinberger, M.
  • Gold, D.T.
  • Divine, G.W.
  • Cowper, P.A.
  • Hodgson, L.G.
  • Schreiner, P.J.
  • George, L.K.

Abstract

Objectives. Given the national interest in progressive dementia, we estimated expenditures incurred in caring for dementia patients who live at home. Methods. Primary caregivers of 264 patients from a university-based memory disorders clinic were interviewed at baseline and asked to keep service use diaries for 6 months; 141 caregivers who returned the diaries are the focus of this report. We examined both formal and informal services (distinguished by whether money was exchanged) and associated expenditures. Results. Neither caregivers returning diaries nor their patients differed at baseline from those not returning diaries and their patients. Expenditures incurred over 6 months were extensive for both formal ($6986) and informal ($786) services. Out-of-pocket expenditures were high (e.g., in-home companion or sitter, adult day care, visiting nurse). Multivariable analyses indicated that patients with more severe symptoms of dementia and families with higher incomes reported significantly higher expenditures. Conclusions. The expense of caring for patients with progressive dementia living at home may be higher than previously estimated and frequently involves expenses paid directly by patients and their families.

Suggested Citation

  • Weinberger, M. & Gold, D.T. & Divine, G.W. & Cowper, P.A. & Hodgson, L.G. & Schreiner, P.J. & George, L.K., 1993. "Expenditures in caring for patients with dementia who live at home," American Journal of Public Health, American Public Health Association, vol. 83(3), pages 338-341.
  • Handle: RePEc:aph:ajpbhl:1993:83:3:338-341_4
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    Cited by:

    1. Carolyn Zhu & Michael Moore & Elizabeth Clipp, 2003. "Dementia Problem Behavior and the Production of Informal Caregiving Services," Review of Economics of the Household, Springer, vol. 1(1), pages 59-76, January.
    2. Wimo, Anders & von Strauss, Eva & Nordberg, Gunilla & Sassi, Franco & Johansson, Lennarth, 2002. "Time spent on informal and formal care giving for persons with dementia in Sweden," Health Policy, Elsevier, vol. 61(3), pages 255-268, September.
    3. Virginia Wilcox & Herman Sahni, 2023. "The Effects on Labor Supply of Living with Older Family Members Needing Assistance with Activities of Daily Living," Journal of Family and Economic Issues, Springer, vol. 44(4), pages 900-918, December.

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