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Mortality among adults with intellectual disability in England: Comparisons with the general population

Author

Listed:
  • Hosking, F.J.
  • Carey, I.M.
  • Shah, S.M.
  • Harris, T.
  • DeWilde, S.
  • Beighton, C.
  • Cook, D.G.

Abstract

Objectives.To describe mortality among adults with intellectual disability in England in comparison with the general population. Methods. We conducted a cohort study from 2009 to 2013 using data from 343 general practices. Adults with intellectual disability (n = 16 666; 656 deaths) were compared with age-, gender-, and practice-matched controls (n = 113 562; 1358 deaths). Results. Adults with intellectual disability had higher mortality rates than controls (hazard ratio [HR] = 3.6; 95% confidence interval [CI] = 3.3, 3.9). This risk remained high after adjustment for comorbidity, smoking, and deprivation (HR = 3.1; 95%CI = 2.7, 3.4); it was even higher among adults with intellectual disability and Down syndrome or epilepsy. A total of 37.0% of all deaths among adults with intellectual disability were classified as being amenable to health care intervention, compared with 22.5% in the general population (HR = 5.9; 95% CI = 5.1, 6.8). Conclusions. Mortality among adults with intellectual disability is markedly elevated in comparison with the general population, with more than a third of deaths potentially amenable to health care interventions. This mortality disparity suggests the need to improve access to, and quality of, health care among people with intellectual disability. © 2013 American Public Health Association.

Suggested Citation

  • Hosking, F.J. & Carey, I.M. & Shah, S.M. & Harris, T. & DeWilde, S. & Beighton, C. & Cook, D.G., 2016. "Mortality among adults with intellectual disability in England: Comparisons with the general population," American Journal of Public Health, American Public Health Association, vol. 106(8), pages 1483-1490.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2016.303240_5
    DOI: 10.2105/AJPH.2016.303240
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    Cited by:

    1. Fabienne Giuliani, 2018. "Treatment of Severe Behavioral Problems in Adults with Intellectual Disabilities," Global Journal of Intellectual & Developmental Disabilities, Juniper Publishers Inc., vol. 5(1), pages 7-9, August.
    2. Laura García-Domínguez & Patricia Navas & Miguel Ángel Verdugo & Víctor B. Arias, 2020. "Chronic Health Conditions in Aging Individuals with Intellectual Disabilities," IJERPH, MDPI, vol. 17(9), pages 1-12, April.
    3. Tanja Sappok & Angela Hassiotis & Marco Bertelli & Isabel Dziobek & Paula Sterkenburg, 2022. "Developmental Delays in Socio-Emotional Brain Functions in Persons with an Intellectual Disability: Impact on Treatment and Support," IJERPH, MDPI, vol. 19(20), pages 1-14, October.

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