I did it for us and i would do it again: Perspectives of rural latinos on providing biospecimens for research

Objectives. We elicited perspectives of rural Latino farmworkers and nonfarmworkers about their participation in a community-based participatory pesticides exposure study in which they provided multiple biospecimens. Methods. Between March and April 2012, we conducted semistructured, oneon- one interviews with 39 rural Latino farmworkers and non-farmworkers in Washington State (n = 39). Nineteen open-ended interview questions aimed to elicit participants' attitudes toward, expectations and experiences of biospecimen collection for research, and willingness to participate in future biomedical research studies. We reviewed and coded transcriptions using qualitative principles of grounded theory in which concepts were identified and themes derived from interview data. Results. We grouped themes into 3 major categories: (1) motivation to participate, (2) challenges of participation, and (3) perceived rewards of participation. Many participants were motivated by the perceived importance of the study topic and a desire to acquire and contribute to new knowledge. Respondents said that the benefits of participation outweighed the challenges, and many expressed satisfaction to be able to contribute to research that would benefit future generations. Conclusions. Our findings supported the use of community-based participatory research to engage minorities as participants and invested parties in such studies.