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Shared decision-making for cancer care among racial and ethnic minorities: A systematic review

Author

Listed:
  • Mead, E.L.
  • Doorenbos, A.Z.
  • Javid, S.H.
  • Haozous, E.A.
  • Alvord, L.A.
  • Flum, D.R.
  • Morris, A.M.

Abstract

To assess decision-making for cancer treatment among racial/ethnic minority patients, we systematically reviewed and synthesized evidence from studies of"shareddecision-making," "cancer," and "minority groups,"usingPubMed,PsycInfo, CINAHL, and EMBASE. We identified significant themes that we compared across studies, refined, and organized into a conceptual model. Five major themes emerged: Treatment decision-making, patient factors, family and important others, community, and provider factors. Thematic data overlapped categories, indicating that individuals' preferences for medical decision-making cannot be authentically examined outside the context of family and community. The shared decision-making model should be expanded beyond the traditional patient-physiciandyad to include other important stakeholders in the cancer treatment decision process, such as family or community leaders.

Suggested Citation

  • Mead, E.L. & Doorenbos, A.Z. & Javid, S.H. & Haozous, E.A. & Alvord, L.A. & Flum, D.R. & Morris, A.M., 2013. "Shared decision-making for cancer care among racial and ethnic minorities: A systematic review," American Journal of Public Health, American Public Health Association, vol. 103(12), pages 15-29.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2013.301631_8
    DOI: 10.2105/AJPH.2013.301631
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    Cited by:

    1. Karriem S. Watson & Katherine Y. Tossas & Yazmin San Miguel & Nicole Gastala & Liliana G. San Miguel & Scott Grumeretz & Vida Henderson & Robert Winn & Masahito Jimbo & Keith B. Naylor & Megan E. Greg, 2023. "Mi-CARE: Comparing Three Evidence-Based Interventions to Promote Colorectal Cancer Screening among Ethnic Minorities within Three Different Clinical Contexts," IJERPH, MDPI, vol. 20(22), pages 1-15, November.
    2. Dana L. Alden & John Friend & Ping Yein Lee & Yew Kong Lee & Lyndal Trevena & Chirk Jenn Ng & Sorapop Kiatpongsan & Khatijah Lim Abdullah & Miho Tanaka & Supanida Limpongsanurak, 2018. "Who Decides: Me or We? Family Involvement in Medical Decision Making in Eastern and Western Countries," Medical Decision Making, , vol. 38(1), pages 14-25, January.
    3. Joy V. Goldsmith & Sachiko Terui, 2018. "Family Oncology Caregivers and Relational Health Literacy," Challenges, MDPI, vol. 9(2), pages 1-10, August.
    4. Thomas, Elizabeth C. & Bass, Sarah Bauerle & Siminoff, Laura A., 2021. "Beyond rationality: Expanding the practice of shared decision making in modern medicine," Social Science & Medicine, Elsevier, vol. 277(C).
    5. Hsin-Lung Chan & In-Fun Li & Ling-Chun Tseng & Yvonne Hsiung, 2020. "Exploring Behavioral Readiness and Program Strategies to Engage Older Community Residents in Advance Care Planning: A Pilot Mixed-Method Study in Taiwan," IJERPH, MDPI, vol. 17(12), pages 1-20, June.

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