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Ethical issues in health research with novel online sources

Author

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  • Vayena, E.
  • Mastroianni, A.
  • Kahn, J.

Abstract

Health-related research is increasingly drawing on novel sources of online data, such as crowdsourced information about disease outbreaks, consumer-supplied information provided to health or wellnessWeb sites, Internet search queries about personal health, and social network postings that identify health behaviors. We offer examples of online sources and their uses, identify ethical and policy issues they generate, and formulate key questions for future discussion and investigation. Further work in this area will require cross-disciplinary collaboration to develop ethics and policy guidance for the ethical use of these novel data sources in health-related research.

Suggested Citation

  • Vayena, E. & Mastroianni, A. & Kahn, J., 2012. "Ethical issues in health research with novel online sources," American Journal of Public Health, American Public Health Association, vol. 102(12), pages 2225-2230.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2012.300813_5
    DOI: 10.2105/AJPH.2012.300813
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