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Research participation as work: Comparing the perspectives of researchers and economically marginalized populations

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  • Davidson, P.
  • Page, K.

Abstract

We examined the historical and regulatory framework of research with human participants in the United States, and described some possible unintended consequences of this framework in the context of paying young injection drug users for their time participating in behavioral and medical research. We drew upon our own experiences while conducting a long-running epidemiological study of hepatitis C virus infection. We found that existing ethical and regulatory framings of research participation may lead to injustices from the perspectives of research participants. We propose considering research participation as a specialized form of work and the use of community advisory boards to facilitate discussion about appropriate compensation for research participation among economically marginalized populations.

Suggested Citation

  • Davidson, P. & Page, K., 2012. "Research participation as work: Comparing the perspectives of researchers and economically marginalized populations," American Journal of Public Health, American Public Health Association, vol. 102(7), pages 1254-1269.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2011.300418_3
    DOI: 10.2105/AJPH.2011.300418
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    Cited by:

    1. Carla Treloar & Rebecca Gray & Loren Brener & Clair Jackson & Veronica Saunders & Priscilla Johnson & Magdalena Harris & Phyllis Butow & Christy Newman, 2014. "“I can’t do this, it’s too much”: building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers," International Journal of Public Health, Springer;Swiss School of Public Health (SSPH+), vol. 59(2), pages 373-379, April.

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