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Privacy versus public health: The impact of current confidentiality rules

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  • Wartenberg, D.
  • Thompson, W.D.

Abstract

Public health research and practice often have been facilitated through the evaluation and study of population-based data collected by local, state, and federal governments. However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing researchers from using these valuable data. We believe that these restrictions, andthe research impeded or precluded by their implementation and enforcement, have had a significant negative impact on important public health research. Members of the public health community should challenge these policies through their professional societies and by lobbying legislators and health officials to advocate for changes that establish a more appropriate balance between privacy concerns and the protection of public health.

Suggested Citation

  • Wartenberg, D. & Thompson, W.D., 2010. "Privacy versus public health: The impact of current confidentiality rules," American Journal of Public Health, American Public Health Association, vol. 100(3), pages 407-412.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2009.166249_4
    DOI: 10.2105/AJPH.2009.166249
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    Cited by:

    1. Khouloud Laffet & Fatma Haboubi & Noomene Elkadri & Rita Georges Nohra & Monique Rothan-Tondeur, 2021. "The Early Stage of the COVID-19 Outbreak in Tunisia, France, and Germany: A Systematic Mapping Review of the Different National Strategies," IJERPH, MDPI, vol. 18(16), pages 1-22, August.
    2. Sonika Bhatnagar & John Lovelace & Ray Prushnok & Justin Kanter & Joan Eichner & Dan LaVallee & James Schuster, 2023. "A Novel Framework to Address the Complexities of Housing Insecurity and Its Associated Health Outcomes and Inequities: “Give, Partner, Invest”," IJERPH, MDPI, vol. 20(14), pages 1-11, July.
    3. Haley, Danielle F. & Matthews, Stephen A. & Cooper, Hannah L.F. & Haardörfer, Regine & Adimora, Adaora A. & Wingood, Gina M. & Kramer, Michael R., 2016. "Confidentiality considerations for use of social-spatial data on the social determinants of health: Sexual and reproductive health case study," Social Science & Medicine, Elsevier, vol. 166(C), pages 49-56.
    4. Geoffrey M. Jacquez & Aleksander Essex & Andrew Curtis & Betsy Kohler & Recinda Sherman & Khaled El Emam & Chen Shi & Andy Kaufmann & Linda Beale & Thomas Cusick & Daniel Goldberg & Pierre Goovaerts, 2017. "Geospatial cryptography: enabling researchers to access private, spatially referenced, human subjects data for cancer control and prevention," Journal of Geographical Systems, Springer, vol. 19(3), pages 197-220, July.

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