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Questioning the consensus: Managing carrier status results generated by newborn screening

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  • Miller, F.A.
  • Robert, J.S.
  • Hayeems, R.Z.

Abstract

An apparent consensus governs the management of carrier status information generated incidentally through newborn screening: results cannot be withheld from parents. This normative stance encodes the focus on autonomy and distaste for paternalism that characterize the principles of clinical bioethics. However, newborn screening is a classic public health intervention in which paternalism may trump autonomy and through which parents are - in effect - required to receive carrier information. In truth, the disposition of carrier results generates competing moral infringements: to withhold information or require its possession. Resolving this dilemma demands consideration of a distinctive body of public health ethics to highlight the moral imperatives associated with the exercise of collective authority in the pursuit of public health benefits.

Suggested Citation

  • Miller, F.A. & Robert, J.S. & Hayeems, R.Z., 2009. "Questioning the consensus: Managing carrier status results generated by newborn screening," American Journal of Public Health, American Public Health Association, vol. 99(2), pages 210-215.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2008.136614_6
    DOI: 10.2105/AJPH.2008.136614
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    Cited by:

    1. Buchbinder, Mara & Timmermans, Stefan, 2011. "Newborn screening and maternal diagnosis: Rethinking family benefit," Social Science & Medicine, Elsevier, vol. 73(7), pages 1014-1018.

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