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The economic burden of home care for children with HIV and other chronic illnesses

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Listed:
  • Wilson, L.S.
  • Moskowitz, J.T.
  • Acree, M.
  • Heyman, M.B.
  • Harmatz, P.
  • Ferrando, S.J.
  • Folkman, S.

Abstract

Objectives. We compared types, amounts, and costs of home care for children with HIV and chronic illnesses, controlling for the basic care needs of healthy children to determine the economic burden of caring for and home care of chronically ill children. Methods. Caregivers of 97 HIV-positive children, 101 children with a chronic illness, and 102 healthy children were surveyed regarding amounts of paid and unpaid care provided. Caregiving value was determined according to national hourly earnings and a market replacement method. Results. Chronically ill children required significantly more care time than HIV-positive children (7.8 vs 3.9 hours per day). Paid care accounted for 8% to 16% of care time. Annual costs were $9300 per HIV-positive child and $25900 per chronically ill child. Estimated national annual costs are $86.5 million for HIV-positive children and $155 to $279 billion for chronically ill children. Conclusions. Informal caregiving represents a substantial economic value to society. The total care burden among chronically ill children is higher than that among children with HIV.

Suggested Citation

  • Wilson, L.S. & Moskowitz, J.T. & Acree, M. & Heyman, M.B. & Harmatz, P. & Ferrando, S.J. & Folkman, S., 2005. "The economic burden of home care for children with HIV and other chronic illnesses," American Journal of Public Health, American Public Health Association, vol. 95(8), pages 1445-1452.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2004.044248_0
    DOI: 10.2105/AJPH.2004.044248
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    Cited by:

    1. Emmanouil Mentzakis & Mandy Ryan & Paul McNamee, 2014. "Modelling Heterogeneity and Uncertainty in Contingent Valuation: an Application to the Valuation of Informal Care," Scottish Journal of Political Economy, Scottish Economic Society, vol. 61(1), pages 1-25, February.
    2. Ahmed Ramadan Shokry Shahat & Giulia Greco, 2021. "The Economic Costs of Childhood Disability: A Literature Review," IJERPH, MDPI, vol. 18(7), pages 1-25, March.
    3. Alicia Aurora Rodríguez & Óscar Martínez & Imanol Amayra & Juan Francisco López-Paz & Mohammad Al-Rashaida & Esther Lázaro & Patricia Caballero & Manuel Pérez & Sarah Berrocoso & Maitane García & Paul, 2021. "Diseases Costs and Impact of the Caring Role on Informal Carers of Children with Neuromuscular Disease," IJERPH, MDPI, vol. 18(6), pages 1-16, March.

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