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The economic impact of multiple sclerosis to the patients and their families in Norway

Author

Listed:
  • B. Svendsen

    (Haukeland University Hospital
    Norwegian School of Economics)

  • N. Grytten

    (Haukeland University Hospital)

  • L. Bø

    (Haukeland University Hospital
    University of Bergen)

  • H. Aarseth

    (Haukeland University Hospital)

  • T. Smedal

    (Haukeland University Hospital
    Haukeland University Hospital)

  • K-M. Myhr

    (University of Bergen
    Haukeland University Hospital)

Abstract

Background Multiple sclerosis (MS) imposes high economic costs on society, but the patients and their families have to bear some of these costs. Objective We aimed to estimate the magnitude of these economic costs in Norway. Method We collected data through a postal questionnaire survey targeting 922 MS patients in Hordaland County, western Norway, in 2013–2014; 546 agreed to participate and were included. The questionnaire included clinical and demographic characteristics, volume and cost of MS-related resource use, work participation, income, government financial support, and disability status. Results The mean annual total economic costs for the patients and their families were €11,603. Indirect costs accounted for 66% and were lower for women than for men. The direct costs were nearly identical for men and women. The costs increased up to Expanded Disability Status Scale score 6 except for steps between 3 and 4 where it remained nearly constant. The costs reduced from EDSS 6 to 8, and increased from 8 to 9. Lifetime costs ranged from €24,897 to €70,021 for patients with late disease onset and slow progression, and between €441,934 and €574,860 for patients with early onset and rapid progression. Conclusion The economic costs of MS impose a heavy burden on the patients and their families. Supplementing the information on the cost of MS to society, our finding should be included as background information in decisions on reimbursing and allocating public resources for the well-being of MS patients and their families.

Suggested Citation

  • B. Svendsen & N. Grytten & L. Bø & H. Aarseth & T. Smedal & K-M. Myhr, 2018. "The economic impact of multiple sclerosis to the patients and their families in Norway," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 19(9), pages 1243-1257, December.
  • Handle: RePEc:spr:eujhec:v:19:y:2018:i:9:d:10.1007_s10198-018-0971-5
    DOI: 10.1007/s10198-018-0971-5
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    References listed on IDEAS

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    1. Emer Fogarty & Cathal Walsh & Christopher McGuigan & Niall Tubridy & Michael Barry, 2014. "Direct and Indirect Economic Consequences of Multiple Sclerosis in Ireland," Applied Health Economics and Health Policy, Springer, vol. 12(6), pages 635-645, December.
    2. Gisela Kobelt, 2006. "Costs and quality of life for patients with multiple sclerosis in Belgium," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 7(02), pages 24-33, July.
    3. Green, Gill & Todd, Jennifer & Pevalin, David, 2007. "Biographical disruption associated with multiple sclerosis: Using propensity scoring to assess the impact," Social Science & Medicine, Elsevier, vol. 65(3), pages 524-535, August.
    4. Gisela Kobelt & Jenny Berg & Peter Lindgren & Bengt Jönsson, 2006. "Costs and quality of life in multiple sclerosis in Europe: method of assessment and analysis," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 7(02), pages 5-13, July.
    5. Gisela Kobelt & Jenny Berg & Peter Lindgren & Bengt Jönsson, 2006. "Costs and quality of life in multiple sclerosis in Europe: method of assessment and analysis," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 7(2), pages 5-13, July.
    6. Gisela Kobelt, 2006. "Costs and quality of life for patients with multiple sclerosis in Belgium," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 7(2), pages 24-33, July.
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    More about this item

    Keywords

    MS; Costs; Patient perspective; EDSS; Global MSSS; Norway;
    All these keywords.

    JEL classification:

    • H24 - Public Economics - - Taxation, Subsidies, and Revenue - - - Personal Income and Other Nonbusiness Taxes and Subsidies
    • H40 - Public Economics - - Publicly Provided Goods - - - General
    • H55 - Public Economics - - National Government Expenditures and Related Policies - - - Social Security and Public Pensions
    • I13 - Health, Education, and Welfare - - Health - - - Health Insurance, Public and Private
    • H31 - Public Economics - - Fiscal Policies and Behavior of Economic Agents - - - Household

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