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Wider institutional research cultures and their influence on patient and public involvement and engagement in health research – An institutional ethnography

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  • Karlsson, Anne Wettergren
  • Kragh-Sørensen, Anne
  • Børgesen, Kirsten
  • Behrens, Karsten Erik
  • Andersen, Torben
  • Maglekær, Karen Margrethe
  • Rothmann, Mette Juel
  • Ketelaar, Marjolijn
  • Petersen, Esben Nedenskov
  • Janssens, Astrid

Abstract

Focus on patient and public involvement and engagement (PPIE) is increasing in health policy and research governance. PPIE is considered by some to be a democratic right, and by others to be a way to improve health care and research outcomes and implementation. Most recently, policy makers, funders and (clinical) research institutions are making PPIE a strategic requirement for health research urging researchers to invite patients and relatives into their research activities.

Suggested Citation

  • Karlsson, Anne Wettergren & Kragh-Sørensen, Anne & Børgesen, Kirsten & Behrens, Karsten Erik & Andersen, Torben & Maglekær, Karen Margrethe & Rothmann, Mette Juel & Ketelaar, Marjolijn & Petersen, Esb, 2024. "Wider institutional research cultures and their influence on patient and public involvement and engagement in health research – An institutional ethnography," Social Science & Medicine, Elsevier, vol. 347(C).
    • Handle: RePEc:eee:socmed:v:347:y:2024:i:c:s027795362400217x
    DOI: 10.1016/j.socscimed.2024.116773
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